Navigating Seizures in MS: What You Need to Know

MS Protocols & Treatments

Have you ever wondered if the sudden, overwhelming sensations you're experiencing could be more than just another MS symptom?

It’s important to know that while living with MS presents its own set of challenges, seizures are not typically one of them. However, a small number of people with MS might encounter seizures during their journey.

Seizures are serious and, although not common among those with MS, when they occur, they require immediate medical attention. It's crucial to address this possibility promptly with healthcare professionals. Despite not being a typical symptom, there is a connection between MS and seizures for some, and understanding this link is key to managing your health effectively.

In this discussion, we’ll explore what MS-related seizures are, delve into why they might occur, and discuss how they can be effectively managed. You’re not alone in this—proper care and support can help you continue to lead a fulfilling life despite these challenges.

What Are MS Seizures?

Seizures occur when there is abnormal electrical activity in the brain. In people experiencing MS, the disease can damage both types of brain tissue: white matter and gray matter. The white matter is where MS lesions often occur, and sometimes these lesions spread into the gray matter. Since gray matter is more sensitive to electrical signals, this damage can lead to seizures.

Although only about 2-5% of people with MS experience seizures (compared to 3% in the general population), the connection between MS and seizures is still being studied. Some research suggests that people with more severe forms of MS or those who have had the disease for a long time are at a higher risk.

Why Do Seizures Happen in People with MS?

The exact cause of seizures in people with MS isn't fully understood, but it likely has to do with how MS affects the brain. The lesions caused by MS create "roadblocks" in the brain’s signaling pathways. When these roadblocks interfere with normal electrical signals, it can lead to a seizure.

Interestingly, some people experience their first seizure during an MS relapse, though seizures can also occur independently of relapses. Other factors like stress, lack of sleep, or certain medications may also increase the risk of having a seizure.

But here's the hopeful part: with the right medical care and lifestyle adjustments, seizures related to MS can often be managed effectively. Many people find that once they understand their triggers and start treatment, they can regain control and continue living life fully. There is always hope for better days ahead!

What Do MS Seizures Look Like?

When MS affects the brain, it can disrupt the way electrical signals are processed, which may lead to seizures. The type of seizure a person experiences depends on which part of the brain is impacted by these disruptions.

Seizures can manifest in different ways depending on which part of the brain is affected. Here are some common types of seizures seen in people with MS:

  • Focal Seizures: These start in one area of the brain and may cause twitching, confusion, or changes in sensation. Sometimes they spread to both sides of the brain.

  • Generalized Tonic-Clonic Seizures: Also known as grand mal seizures, these involve loss of consciousness and uncontrollable jerking movements.

  • Absence Seizures: These are brief episodes where a person may seem to "zone out" or stare blankly for a few seconds without any jerking movements. Seizures can last anywhere from a few seconds to several minutes and may leave someone feeling tired or confused afterward.

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What Can Be Mistaken for A Seizure?

Not all sudden movements or episodes of confusion are necessarily seizures. Sometimes, people with MS experience what are called paroxysmal symptoms. These are brief, sudden symptoms like muscle spasms, slurred speech, or tingling sensations that can mimic a seizure but are caused by different mechanisms. 

This is why it's so important to work closely with your healthcare provider to understand whether what you're experiencing is truly a seizure or something else related to your MS.

How Are MS Seizures Treated?

The good news is that if you do experience seizures as part of your MS journey, there are treatments available. Anti-seizure medications (the same ones used for epilepsy) can help control seizures effectively. If you suspect you've had a seizure for the first time, it's important to see your doctor right away so they can confirm what's happening and develop a treatment plan tailored to your needs.

Living With Both MS and Seizures… How To Feel In Control

Managing both MS and seizures can feel overwhelming at times. But remember that you're not alone—many others have faced similar challenges and found ways to live fulfilling lives despite these conditions. Here are some tips that can help you find relief, especially when combined with the advice of your healthcare professional:

  • Track Your Symptoms: Keep a journal of when you experience possible seizure activity and any triggers like stress or lack of sleep. This is the best way to see what your body reacts to and why.

  • Wear Medical Bracelet: A medical bracelet can alert others if you have a seizure while out in public. Oftentimes, this just puts you and your loved ones at ease knowing that there is a way to alert others in case of an emergency.

  • Build Support: Surround yourself with family, friends, and healthcare professionals who understand your condition and can offer support when needed. MS is a journey that cannot be done alone.

Managing MS Seizures Is Possible With The Correct Approach

While seizures aren't common in people with MS, they do happen. If you're living with both conditions, it's important to stay informed and proactive about your health. With proper treatment and support, you can manage your symptoms and continue living life on your terms.

Remember: You’re not alone on this journey. There’s always hope—and help—available!

If you’re curious to gain more information about your specific MS symptoms, my app is the perfect place to help you find solutions! Here you can learn and track how your symptoms relate to your overall well-being, along with joining a community of MS warriors! Together, we ask questions, receive answers, and inspire each other to take on everyday challenges with confidence. To try it out for yourself, use the iOS or Google Play links here!

Do you have any further questions on MS seizures and how to manage treatment? Please feel free to DM me on Instagram @doctor.gretchen.

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Hi, I'm Dr. Gretchen!

As a physical therapist & Multiple Sclerosis Certified Specialist, I have spent the last 10 years teaching people with MS how to feel more confident & empowered through MS-specific exercises and strategies.

If you want support and encouragement, plus a healthy dose of tough love, come follow me on Instagram (@doctor.gretchen) or on YouTube @DoctorGretchenHawley. It's where I share daily tips, tricks, and information about new offers — plus, you’re bound to feel more empowered, hopeful, & motivated after watching each post and video!

Questions? Email me at Hello@DoctorGretchenHawley.com